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Lenore Susan and Pepper |
At midnight I woke up to join the Maryknoll Office of Global Concerns Prayer Vigil for World AIDS Day. I could see a full moon overhead in a crystal clear sky. My neighbor's windows had electric candles burning in each window pane. And I began to remember the many people I had met during this long journey which began for me in Tanzania.
I first went to Kowak Bedded Dispensary in 1985 and met a raging measles epidemic. In 1987 I began to see young people, especially men, who were wasting away and very sick. One was 27 years old. He was well educated and worked as an airplane mechanic at the International Airport in the capital city, Dar-es-Salaam. When he could see that he was dying he traveled the entire breadth of the country to come home to Kowak to be with his family. In 1987 I saw two people; in 1986 thirteen and in 1987 39. The trajectory of the epidemic was sky rocketing.
I remembered a woman whose husband died of this mysterious illness. The custom of the Luo speaking people in Kowak was for a brother of the husband to inherit his wife and children. She would become his wife now and she would be cared for by him. But that man was terrified and announced that he wouldn't take her until she had lived a long time. This prevented the spread of the virus but it also left her destitute. This man was not going to care for a woman and her children without concomitant conjugal rights.
I remembered the lab worker in Lobone Sudan who had tested a person for HIV and had to leave the area. When the doctor told the person the test was positive the family threatened to kill the lab worker. This was during the war and very little was understood by local people about HIV/AIDS. People solved their problems with guns.
I remembered Daisy and her brother Geoffrey who came to our hospital in Kimini, Kenya at ages five and two to be hospitalized MANY times. They had both been infected in utero and their mother had died. The father was unknown. Then, another Maryknoll Lay Missioner and physician assistant, Marj Humphrey, began them on pediatric antiretroviral medications at the Kitale AIDS Program in the big nearby town. Over the next two years they both got stronger and stronger and were never hospitalized with us again. I saw them last in 2011. Daisy was a teenager and Geoffrey was still an imp, albeit getting bigger and more impish.
I remembered L., a well educated woman with whom we all worked in Nanyangacor Sudan on water projects and development for the Diocese of Torit. I had heard that she was very sick and expected to die. The rumor was that she had AIDS. Her husband was a rebel soldier who had died in a car accident and she became a member of parliament when South Sudan gained independence in July 2011. I last saw her in 2018, much thinner and weaker but she didn't die. She was, like so many South Sudanese, much stronger than we could imagine and with the help of medications she continued to live on.
I remembered so many people in Mombasa between 2010 and 2018 who were still stigmatized by others because of their illness. Some were so terrified they couldn't tell their local medical assistant. One day a tall, healthy man with a Turkana name came to the clinic, in Bangla informal settlement where he lived, to get his blood pressure medicines and they weren't working. So, the medical assistant asked me to see him. Because I recognized his name from a place VERY far away from Mombasa we started chatting. I asked him if he had been screened for HIV and he said yes. I asked him what the result was and he said he was positive. He was going to an AIDS clinic in the next informal settlement to get medicines for HIV there. He was coming to the clinic in his home to get his blood pressure medicines. Neither clinic knew all the medicines he was taking. He didn't want anyone in his home clinic to know he had HIV.
We have made a lot of progress with the HIV pandemic but still there is no vaccine. In contrast, the Covid pandemic is very close to rolling out vaccines and there is no stigma. What a lot we all still have to learn about health and humanity.
At the end of this month I will retire as a Maryknoll Lay Missioner and this will be my last post on this blog. My mother and I are well, as you can see in our picture, and we wish you a very blessed Advent season. May it bring you to a joyful Christmas and many blessings in the New Year.
PEACE OF GLOWING CANDLES AND LOVING HEARTS BE WITH YOU